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GAN

JORDAN’S JOURNEY FOR A CURE Life Stories

JORDAN’S JOURNEY FOR A CURE

Pete and Christa Gagnon started 2016 with good cheer for family and friends: “As the New Year approaches us with new hopes, here is wishing you and your family a wonderful year ahead.” Four days into 2016 I received an email from Christa.  She said their 5 year old daughter Jordan had been ill. It was serious. Doctors’ initial diagnosis was leaning towards GAN - Giant Axonal Neuropathy - a rare, incurable, terminal, genetic disorder. Say that last phrase again - slowly - to let it sink in on you. (more…)
Bob Jones
May 1, 2019
PRAYER MINUTE FOR JORDAN GAGNON Uncategorized

PRAYER MINUTE FOR JORDAN GAGNON

Beautifully peaceful, loving, happy, and easy going, these are all words I would use to describe my daughter Jordan Gagnon. But here are some other less liked words, Terminal, GMO, patient #7, GAN. Those words I wish we could forget. Jordan was diagnosed over three years ago with Giant Axonal Neuropathy (GAN). This currently is a terminal genetic condition that effects the nervous system, slowly cutting of every nerve in the body. On August 2nd Christa messaged, "Hey Pastor Bob, have you ever heard of a prayer minute done on social media? I had this thought yesterday that I could orchestrate a specific day and time for those that were interested they could pray for Jordan and our miracle. Has…
Bob Jones
August 24, 2018
HUMANS OF NORTH POINTE: 2016 Uncategorized

HUMANS OF NORTH POINTE: 2016

Everybody's got a story and yours can inspire the world. That's why we started #humansofnorthpointe in 2016. Once or twice a week we're posting stories of people on North Pointe's Facebook page. Thousands of people have viewed and shared some of the following stories. Search the hashtag #humansofnorthpointe to see all of the stories so far. JOHN ORFINO "I am still alive. But,my speech, my breathing and my physical strength is quickly fading. I am still able to operate my scooter in the house and I try to do everything I can by myself and Judee gets very mad at me because I am so stubborn. Daxon and Espen mean the world to me and are my #1 reason why…
Bob Jones
December 25, 2016
WHEN A CHILD SUFFERS: A MOM’S HEART Uncategorized

WHEN A CHILD SUFFERS: A MOM’S HEART

Christa Gagnon is the proud mom of two handsome boys and one precious little girl. When all of her friends in high school were discussing which programs they were going to take in University and what they wanted to be when they “grew up” she can remember thinking that her one and only desire in life was to be a mom. Being A Mom Being a mom was the best career choice she ever made. “I will never forget the first amazing months with my first child. Looking at him and thinking that I had no idea the heart could feel that amount of love for one human being. To my surprise it was the same when Jordan was born…
Bob Jones
May 8, 2016