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Jordan Gagnon

Life Stories

JORDAN’S JOURNEY FOR A CURE

Pete and Christa Gagnon started 2016 with good cheer for family and friends: “As the New Year approaches us with new hopes, here is wishing you and your family a wonderful year ahead.” Four days into 2016 I received an email from Christa.  She said their 5 year old daughter Jordan had been ill. It was serious. Doctors’ initial diagnosis was leaning towards GAN - Giant Axonal Neuropathy - a rare, incurable, terminal, genetic disorder. Say that last phrase again - slowly - to let it sink in on you. (more…)
Bob Jones
May 1, 2019
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PRAYER MINUTE FOR JORDAN GAGNON

Beautifully peaceful, loving, happy, and easy going, these are all words I would use to describe my daughter Jordan Gagnon. But here are some other less liked words, Terminal, GMO, patient #7, GAN. Those words I wish we could forget. Jordan was diagnosed over three years ago with Giant Axonal Neuropathy (GAN). This currently is a terminal genetic condition that effects the nervous system, slowly cutting of every nerve in the body. On August 2nd Christa messaged, "Hey Pastor Bob, have you ever heard of a prayer minute done on social media? I had this thought yesterday that I could orchestrate a specific day and time for those that were interested they could pray for Jordan and our miracle. Has…
Bob Jones
August 24, 2018
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HUMANS OF NORTH POINTE: 2016

Everybody's got a story and yours can inspire the world. That's why we started #humansofnorthpointe in 2016. Once or twice a week we're posting stories of people on North Pointe's Facebook page. Thousands of people have viewed and shared some of the following stories. Search the hashtag #humansofnorthpointe to see all of the stories so far. JOHN ORFINO "I am still alive. But,my speech, my breathing and my physical strength is quickly fading. I am still able to operate my scooter in the house and I try to do everything I can by myself and Judee gets very mad at me because I am so stubborn. Daxon and Espen mean the world to me and are my #1 reason why…
Bob Jones
December 25, 2016
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JORDAN’S JOURNEY FOR A CURE: PART 2

When five-year-old Jordan Gagnon and her mom Christa woke up they realized they weren't in Kansas anymore.  An eleven month journey through uncharted health territory, culminated in a cross-continent trip to the National Institutes of Health Clinical Centre, in Bethesda, Maryland. The NIH Care Centre is America's largest hospital devoted entirely to clinical research. Jordan is in Maryland to receive gene therapy to battle GAN. How Precious Is One Life? If you’ve never heard of GAN, you’re not alone. There are less than 70 documented cases of GAN  in the world. Giant Axonal Neuropathy means that Jordan’s body doesn’t produce enough or any of a protein needed to attach to her axons telling her body to clean them up. Therefore…
Bob Jones
July 25, 2016