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JORDAN’S JOURNEY FOR A CURE: PART 2

When five-year-old Jordan Gagnon and her mom Christa woke up they realized they weren't in Kansas anymore.  An eleven month journey through uncharted health territory, culminated in a cross-continent trip to the National Institutes of Health Clinical Centre, in Bethesda, Maryland. The NIH Care Centre is America's largest hospital devoted entirely to clinical research. Jordan is in Maryland to receive gene therapy to battle GAN. How Precious Is One Life? If you’ve never heard of GAN, you’re not alone. There are less than 70 documented cases of GAN  in the world. Giant Axonal Neuropathy means that Jordan’s body doesn’t produce enough or any of a protein needed to attach to her axons telling her body to clean them up. Therefore…
Bob Jones
July 25, 2016